Misdiagnosis

This page contains stories of STARS members who have suffered misdiagnosis.

Julie’s story (Part One)

From an early age I was prone to fainting. Assemblies and nativity plays would be the worst for me. I was always tired and lacked concentration. My mother was called into school to discuss this issue. The school felt it wasn’t normal for a child of 8 to have such a lack of energy. I was spending a large part of the day, “daydreaming”, as it was called,

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Chelsea’s story

When I was little I was diagnosed with epilepsy and lots of things would trigger a fit, like being sick. I had lots of medicines to try and control the fits but nothing worked.

I started with attacks when I was a toddler and it wasn’t until I was twelve and became very ill that finally mum became impatient with the hospital and asked for me to be referred to a specialist. We visited a consultant in Sheffield and he told us it was Reflex Anoxic Seizures.

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Ela Star Garside’s Story

After spending the day relaxing in the July sun in my family garden I headed off to start work in my local pub where, after a couple of hours, I suffered my first convulsion.

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