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Ryan’s Story

My brother Bradley, who is four and a half years old, suffers with Reflex Anoxic Seizures (RAS) . He first suffered with this when he was only a few weeks old. My mum has syncope and she has had it since she was 13 years old. They were both misdiagnosed with epilepsy and my mum was even put on tablets for epileptic fits. It wasn’t until Bradley was diagnosed about 3 years ago in a hospital at Belfast that mum understood her condition. After that I wanted to help people be more aware of these conditions so I decided to start raising money for STARS. 

Ryan


My Mum helped me approach various companies.  First of all I handed out baskets for two hours at Asda and I raised a lot of money that day -  whether the December seasonal joy was encouraging people to dig deeper, I don’t know ! Next, I did Sainsbury’s for three hours packing bags for people, which I found interesting because I saw how different people like things organised .Some don’t really care and others just put it in the boot of their car -loose!  Mum & Nan now have a top bag packer when they go shopping ! 
 
Most recently I stood at the main Entrance of Trago Mills, and they have very kindly said I can return every 8 weeks for 3 hours. I didn’t collect as much on this occasion as I did previously at other stores. However, I was able to answer people’s questions and raise awareness as I had more free time to explain.
 
When Bradley first started having Reflex Anoxic Seizures I use d to be very frightened and freeze or I’d go daft, and scream and cry. Mum would sit me down and explain, and tell me not to be frightened as it would all be OK.  I was scared I’d lose my brother.  I still hope he will grow out of RAS like the doctors told Mum, but at the moment there is no sign of that. The difference is that Bradley is more aware of what is happening. He doesn’t like it when a seizure has spoilt what he is doing. The hot weather is troubling him at the moment. Bradley is very out going, extremely active and the best brother I could ask for!