Contact Details
PHONE
:
+44(0)1789 450564
FAX:+44(0)1789 450682

Emai: info@stars.org.uk

STARS

“Working together with individuals, families and medical professionals to offer support and information on Syncope and Reflex Anoxic Seizures”

Fiona’s Story

Fiona was diagnosed very early on, but we were given no information apart from the fact that although the attacks look and sounded unpleasant they were not life-threatening. We were on our own until I was leafing through a woman's magazine and saw an article about Francesca Lobban. I've been in contact with Trudie, who runs STARS ever since and have been to a couple of STARS conferences. Fiona now has the additional handicap of being diagnosed with ADHD which may or may not be connected to RAS, nobody knows. I have spoken at one of the conferences about life with an ADHD teenager and the problems it brought to the family. Luckily for us, most of the trauma of the past 5 years is behind us now as Fiona is managing ADHD and RAS without any medication. It is really down to all of us as a unit supporting her through the bad times that has finally got her through.

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