Joel’s Story

As a mum, I remember vividly those dark days when Joel would have had multiple RAS attacks per day, especially when he was toddling, or go a week without one and I would feel elated only to be brought down to earth again when another attack occurred. Naturally I wanted to wrap him in cotton wool and protect him from any incident likely to lead to an RAS. I remember wondering if Joel could have the normal life other little boys have.

But Joel (now 7) was a determined little boy! He has an older brother and, of course, he had to keep up with him!
 

From an early age Joel showed a love for rugby, watching it on TV, and kicking the ball from the stand and passing the ball to his brother and asking for the supporters clothing. Frequently with family and friends he proudly goes to watch his team Ulster play.

As his desire for rugby grew, I knew the inevitable question was coming! When Joel was 6 years old, he was eligible to join his local rugby club.  I gritted my teeth and decided to encourage his passion for this physically demanding sport, and registered him with the club. I made his leaders and organisers aware of his medical condition using the STARS information leaflets. The club was very accepting of Joel and there was no issue about his medical condition.

Joel sustains injuries during rugby, but as Joel has grown up he is aware that any injury potentially can lead to an RAS attack, so knowledge is power as this reduces his near misses and a full blown attack. He is so passionate about rugby and gives it one hundred percent!

Can you imagine my immense pride when Joel was presented with the award “Player of the year P2/P3” in May 07. This picture shows Joel with Rory Best, Ireland’s Hooker NO 2. Rory Best presented Joel with player of the year for his age group in his local Banbridge rugby club! We were all so proud of his achievement. His dream is that his friend Callum and he WILL play for Ulster and Ireland in the future!

This award and picture, shows that there is a lot of living to do done with RAS. Yes its two years now since Joel has had an RAS, and yes he still has "near misses", but he lives life to the full by minimising risks, that extra supervision, and patient and carer knowledge.

I can only stress to all parents out there with children who suffer from RAS that, although there are dark days, there are many more brighter days. Encourage your child to live life to the full by minimising risks to achieve their dreams!
 
So Joel is looking forward to the Rugby World cup later in the Year, and watching his hero Rory Best. Come on Ireland!!
 

Copyright © STARS