Anita’s Story
My problems with pre-syncope spells began 13 years ago when I was 16. I had multiple dizzy spells when standing up – the kind that most people have had at some point in their lives, maybe when standing up from a hot bath. Every thing “closes in” and goes black and blurry. The GP put it down to hormones and being a teenager. The spells became more frequent and caused me to collapse to the floor, though I never lost consciousness. I was referred to a neurologist who also dismissed it as the result of being a “young female”.
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Ela's Story

After spending the day relaxing in the July sun in my family garden I headed off to start work in my local pub where, after a couple of hours, I suffered my first convulsion. I can recall being behind the bar laughing with a customer whilst pulling a pint of bitter, the next minute I remember waking up on a hospital bed asking for my father. I was informed that I had had an epileptic fit, which anybody can have at any time in their life, told not to worry too much, just carry on as normal, and then sent home. Returning to work a week later, I felt happy and healthy, until one particular evening after finishing my shift when I suffered my second fit. The following day I had extensive tests at the Alexander Hospital to try to determine why this had happened to me, and if it could, or would happen again. Several days later I was told by the hospital consultant that I was epileptic, even though the tests did not provide any evidence to support this diagnosis. Read more.

Mari & Lowri’s fight for Referral
Mari & Lowri first experienced fits at the age of 18 months but it took much longer for a diagnosis or a referral. Read more

Kellie’s Story
Life was pretty good for my daughter Kellie in 2005. She was happy at boarding school with plenty of friends, doing very well academically (on an academic scholarship) and enjoying her new love of rowing. Then, out of the blue, she started collapsing for no apparent reason Read more...

Julie’s Story

From an early age Julie was prone to fainting. She was always tired and lacked concentration. Her mother was called into school to discuss this issue. The school felt it wasn’t normal for a child of 8 to have such a lack of energy or to spend so much time “daydreaming”, as it was called. After visiting her GP and undergoing tests, it was decided it was down to her age and she would grow out of it.
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