Information and support days for patients
The Society for Cardiothoracic Surgeons Patients Forum, April 2012
Invitation for patient representatives
The Society for Cardiothoracic Surgeons in Great Britain and Ireland (SCTS) are holding their Annual Meeting and Conference in April 2012. For the fourth year they will be inviting patient representatives to a Patients' Forum and this year it will be on Thursday 19 April in Manchester. SCTS will cover entrance fees, refreshments, lunch and conference documentation, but patients will have to arrange their own travel costs.
Please contact David Geldard, SCTS Patient Representative on 01706 861381 or email david.geldard2@sky.com
STARS Patients Day 2012
Sunday 23rd September 2012, Birmingham ICC
10:00-16:00
STARS Patients Day 2012 promises a day packed with syncope and POTS specialists as well as an inspiring patient presentation.
Agenda:
- POTS Clinics: The way forward
- RAS versus breath holding
- Managing RAS (triggers, night terrors and sleeping problems)
- Fight or Flight: Psychogenic syncope causes real problems
- My journey to a diagnosis
- Exercise for Syncope and POTS (Result of research programme)
- Is it in the age?
- POTS
- To pace or not to pace?
A full day meeting with refreshments and lunch
£25.00 per delegate to all STARS subscribers and their carers registering directly through STARS. Cost to non-subscribers £50.00
To register your interest to receive further information about STARS Patients Day 2012, please email jenni@stars.org.uk or write to Jenni: STARS, PO Box 175, Stratford upon Avon, Warwickshire, CV37 8YD
Download STARS Patients Day agenda
Thank you to everyone who attended STARS Patient Day 2011
The day was a great success and we would like to say a special thank you to everyone who attended. If you were not able to complete your evaluation form on the day, please provide feedback to us online. Click here to complete the STARS Patient Day Evaluation form.
Above: Trudie Lobban Founder & CEO of STARS presenting Anita Kiernan, STARS member, with the Charles Lobban Volunteer Award for Outstanding Contribution to Arrhythmia Service at STARS Patient Day. Congratulations Anita!
Charles Lobban Volunteer Award for Outstanding Contribution To Arrhythmia Services
Anita Kiernan, STARS Volunteer
This year’s winner of the Charles Lobban Volunteer Award is very special to STARS. Since she was 16 years old she had endured multiple dizzy spells and collapses and initially the indignity of being told it was because she was a young female.
Through stressful times, with the support of her husband and brother in law (who ran marathons at the other end of the world for STARS), she has never forgotten us! Even on her wedding day she forewent wedding favours so the money could be donated to STARS.
We were very excited when she told us the news that she was expecting a baby but thrilled when she immediately asked if we thought our members would appreciate her writing a pregnancy diary – this diary has been the source of support to numerous mums to be and welcomed by Syncope Clinics!
Despite a lively daughter to manage she is now back at work and we receive regular donations from her department, following bake-ins and dress down days. An indication of how respected and admired our ‘STAR’ is.
Conscious that STARS is also dedicated to raising awareness, she agreed to do an interview for the Daily Mail on POTS and how it affected her family life. This was particularly hard as she is a private person. And then we asked if she would consider speaking at Patients Day!